Comments for Personal Genome Project Blog http://blog.personalgenomes.org News and updates about the Personal Genome Project Sat, 11 May 2013 20:38:09 +0000 hourly 1 http://wordpress.com/ Comment on Group Photo of PGP Participants at 2013 GET Conference by Jason Bobe http://blog.personalgenomes.org/2013/05/10/group-photo-of-pgp-participants-at-2013-get-conference/#comment-110 Sat, 11 May 2013 20:38:09 +0000 http://blog.personalgenomes.org/?p=1176#comment-110 Hi Clifford – Yes, we will definitely put it on the agenda as an official activity next year so people may plan, great idea.

I’ll be posting all the photos on our Flickr account shortly, with CC licensing and proper photo credit (photo credit: PersonalGenomes.org). The photographer this year is Mike Dravis and he did a great job.

Jason

]]> Comment on Group Photo of PGP Participants at 2013 GET Conference by Clifford G Andrew http://blog.personalgenomes.org/2013/05/10/group-photo-of-pgp-participants-at-2013-get-conference/#comment-109 Sat, 11 May 2013 13:26:57 +0000 http://blog.personalgenomes.org/?p=1176#comment-109 Great photo! (photo credit would be nice). I believe that it is worthwhile to “put a face” on the Personal Genome Project and that the best way to do this is at the annual GET Conference. Unfortunately, the group picture was not publicized in advance, and (with some participants leaving after the first full day and others at various venues at the time it was announced) this captured less than half of the actual attendees and was down from (105 in 2012; 66 in 2013). In 2014 let’s put the Annual PGP Participant Group Photo on the agenda and do it just before lunch on the first day when everyone is present.

]]> Comment on A Very Personal Genome Project by Human Genomes on SALE: 99% OFF! http://blog.personalgenomes.org/2013/05/02/a-very-personal-genome-project/#comment-108 Tue, 07 May 2013 16:16:14 +0000 http://blog.personalgenomes.org/?p=1152#comment-108 [...] As part of contributing your genome to their research pool, they explain your sample is “highly identifiable” and their study guide teaches that “identities can be discovered with surprisingly [...]

]]> Comment on HeLa’s Genome: Help Us Create Well-Consented Cell Lines by Clifford G Andrew http://blog.personalgenomes.org/2013/03/29/helas-genome-help-us-create-well-consented-cell-lines/#comment-106 Mon, 01 Apr 2013 01:29:46 +0000 http://blog.personalgenomes.org/?p=1086#comment-106 So if HEnrietta LAcks’ immortal cell line became “Hela” cells, does that mean that mine will be “Clan” cells – CLiff ANdrew?

]]> Comment on CAGI Update: Challenge ends March 28 by Results for week beginning 2013-02-25 | Iron Blogger http://blog.personalgenomes.org/2013/03/03/cagi-update-challenge-ends-march-28/#comment-105 Sat, 30 Mar 2013 21:38:26 +0000 http://blog.personalgenomes.org/?p=1048#comment-105 [...] CAGI Update: Challenge ends March 28 [...]

]]> Comment on CAGI Update: Extended to April 25 by Madeleine Price Ball http://blog.personalgenomes.org/2013/03/26/cagi-update-extended-to-april-25/#comment-103 Fri, 29 Mar 2013 12:30:06 +0000 http://blog.personalgenomes.org/?p=1082#comment-103 We have a lot of new genomes, but aren’t nearly at 1,000 yet! Genomes are still fairly expensive. There’s around 160 right now: https://my.personalgenomes.org/public_genetic_data/statistics

]]> Comment on CAGI Update: Extended to April 25 by Patricia Daly Ochsner http://blog.personalgenomes.org/2013/03/26/cagi-update-extended-to-april-25/#comment-101 Tue, 26 Mar 2013 21:08:57 +0000 http://blog.personalgenomes.org/?p=1082#comment-101 I’m curious to know how many of the “1000″ PGP participants (of which I am one) have had their genomes sequenced?

]]> Comment on The First Rule of Genomic Identifiability by Results for week beginning 2013-02-04 | Iron Blogger http://blog.personalgenomes.org/2013/02/08/the-first-rule-of-genomic-identifiability/#comment-96 Wed, 20 Feb 2013 01:35:20 +0000 http://blog.personalgenomes.org/?p=1015#comment-96 [...] The First Rule of Genomic Identifiability [...]

]]> Comment on The First Rule of Genomic Identifiability by Gholson Lyon (@GholsonLyon) http://blog.personalgenomes.org/2013/02/08/the-first-rule-of-genomic-identifiability/#comment-95 Fri, 08 Feb 2013 17:59:22 +0000 http://blog.personalgenomes.org/?p=1015#comment-95 Thanks for this post, Misha. As I stated on Twitter, the work by Yaniv and others is vitally important, but we must change the dialogue to “enable” individualized medicine with genomics, NOT have bureaucrats and regulators shut things down due to the privacy bogey-man. In my work with hundreds of “patients” (who I prefer to call “people”), it is obvious that their concerns are about how to live better lives and understand the diseases that they and others suffer from, NOT about ephemeral and silly privacy concerns brought up by regulators and lawyers with little understanding of medicine. I fully support the efforts of disruptive technologies and companies, such as the Personal Genome Project, 23andMe, Ancestry.com, PatientsLikeMe, and others, who are really trying to develop the age of individualized medicine, for the betterment of mankind.

]]> Comment on Genome re-identification in the news by Why DNA privacy should not be on your radar today | Rick Colosimo – Views of a Modern World http://blog.personalgenomes.org/2013/01/17/genome-re-identification-in-the-news/#comment-93 Tue, 22 Jan 2013 16:41:33 +0000 http://blog.personalgenomes.org/?p=1002#comment-93 [...] the way, in response to this study, the PGP reminded participants that this is obviously not an issue for us and of the rationale for not trying to protect [...]

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